Tuesday, August 21, 2007

I just had a weird memory

The timeframe shortly after Emma's diagnosis is a blur. After the emotional destruction you feel during the diagnosis, and the fogginess you feel in your brain because all of a sudden you have to provide life-sustaining treatment to your child all day and all night, every day.

The Endo that worked with us in the hospital is not the one that treats her now. The End in the hospital didn't accept our insurance. So, when we left the hospital, she allowed me to call in for a few days with some numbers but made it clear to me we weren't "part of the practice" and I needed to decide whether I was going to go to them "out of network" or change.

So, I called the one pediatric Endo practice on our insurance (there are only 2 pediatric Endos in the area - one was in the hospital with us and the other treats us now). After I told them that I couldn't wait four months for an appointment, I finally got one for about 10 days after we left the hospital.

We met with the actual doctor that morning - not a nurse and not a Certified Diabetic Educator. Why? Because the only way they could fit us in is to schedule us with the "on call" Doctor - which is the one we wanted anyway. Anyway, the first thing she did is look at our numbers and our regimen and said "ok, we're changing it" and gave us a 10 minute crash course on the new regimen. It was about lunchtime, so she told us to go eat and then come back in the afternoon to meet with the nurse and CDE to get a little more training on how the practice worked, etc.

So, she handed us a new bottle of insulin and said "go eat and do the new regimen at lunch" and just like that we were changed from a sliding scale to a full basal/bolus.

Why did this memory come back for me so vividly this evening? Well, tomorrow is the first time Emma is going back to the main hospital since that visit - our follow-up visit was in the satellite clinic. We will probably be eating lunch in the cafeteria again and I was thinking how much easier it will be for us to dose her for lunch on this visit than it was on the last one.

Tomorrow is the appointment with the pediatric psychologist - a required step in the pump process. Hopefully she doesn't think the entire family is a complete nuthouse and unworthy of a pump! :)

No comments: