I haven't updated in a while. Perhaps because we have been so busy with pump start. Pump start has gone pretty well. But just about every expectation we had about how her settings would be have been blown out of the water.
- We have adjusted basal rates almost every day. We have about 6 different rates going throughout the day and will probably add a couple more before we are done.
- My CDE has finally admitted that Emma actually goes high when she takes a nap. She says she's only encountered one other patient that did that - so we now set a 20% increase in basal when she takes a nap
- All of our meal I:C ratios that we thought would be stable are not.
We've had sites go out in 6 hours, none of our sites have lasted 3 days, we had a lot more cases of ketones with the pump.
But despite all of that, it is still SO MUCH BETTER than injections. Its so much easier to get out of the house than it used to be. Its so much easier to dose her for a meal. I'm starting to see trends with her pumping the same way I saw them on injections, so we can try and counteract them.
So, definitely, this was the right decision for us!!
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Our kids need a basal kick for about the first hour to 90 minutes of sleep. That when they grow.
OK there are a little larger but I am not at all surprised about the needing more for naps thing.
YDMV!
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